AAID files suit challenging how Texas recognizes dental specialties (28 pages)

clinical bite • aaid’s new clinical bite enewsletter

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6

news

S

pring

2014

www.aaid.com

L

ike many who suffer
from ectodermal dys-

plasia (ED), 14-month-old
Jacob was initially diag-
nosed by his dentist. As the
first health care provider to
link together the various
symptoms described by the
child’s parents — delayed
teething, severe facial
eczema, sparse eyelashes
and missing eyebrows, red
rimmed eyes, unwillingness
to drink warm beverages —
Jacob’s dentist suspected an
ED disorder.

“We were incredibly

lucky that our dentist knew
how to recognize ED,”
explains Jacob’s mother,
Meghan Howard. “Many
families go through years of
dental treatments without
hearing about ED as a pos-
sible diagnosis, or having

enamel and decay issues
blamed on poor diet and
dental hygiene.”

Diagnosis

“One of the challenges in
diagnosing ED is that is it
not always a simple, consis-
tent, predictable clinical
presentation,” explains Dr.
Kevin Butterfield, division
chief of dentistry and oral
and maxillofacial surgery
at the Ottawa Hospital in
Canada.

ED refers to more than

170 rare genetic disorders
that cause abnormal ecto-
derm development. The
main ED defects can be
divided into 4 types of dys-
plasia — dental, hair, nail
and sweat glands. Dentists
can be instrumental in
diagnosing ED as they can

observe first-hand dental
defects caused by the var-
ious disorders, including:
• Anodontia or hypodontia
• Taurodontism of decid-

uous molars

• Permanent dentition

often limited to: central
incisors, first molars and
canines (maxilla);
canines, first premolars
and first molars
(mandible)

• Deficient alveolar ridges

(associated with
hypodontia)

• Underdeveloped jaws
• Malformed teeth
• Cleft lip or palate
• Absence of lingual

frenulum

When Jacob’s dentist

believed that the toddler
likely had ED, he referred
him to a pediatric dentist
who practices at the

Children’s Hospital of
Eastern Ontario (CHEO) in
Canada. “We were so
relieved and grateful to
meet with a specialist expe-
rienced in treating patients
with ED,” remembers Ms.
Howard.

Treatment

Patients with ED are usually
good candidates for implant
therapy, and the procedure
success rate compares to that
of normal patients. However,
they often have to undergo
bone augmentation in prepa-
ration for implant placement.
In October 2013, Dr.
Butterfield performed dental
implant placement on Jacob,
who is now 5 years old.

“While the varying clin-

ical presentations can cause
difficulties in the diagnostic

Clinical Bite

A Dentist Recognizes Ectodermal Dysplasia and Brings Welcome Relief to Family

see Clinical Bite p. 8

The Canadian Ectodermal Dysplasia
Syndromes Association (CEDSA)

When Jacob was first diagnosed, there was no Canadian
organization dedicated to helping patients with ED. To help fill
that gap in service, Meghan Howard founded the Canadian
Ectodermal Dysplasia Syndromes Association (CEDSA) in
2010.

CEDSA supports families through teleseminars with maxillofa-
cial surgeons, a comprehensive website, regular newsletters,
a support fund to help cover the important dental and med-
ical costs associated with treatment, and the creation of a
secure medical and dental expert database.

To learn more about CEDSA activities and services, visit
www.ectodermaldysplasia.ca.

AAID’s NEW Clinical Bite
eNewsletter

AAID’s newest enewsletter brings you clinical information

every other month. We search Dentistry and Oral Sciences

Source and identify three recently published full-text articles

on a different topic. We provide a summary of each article,

the citation for the article, and a link to login to obtain the full

text article — all at no charge for members of the American

Academy of Implant Dentistry.

If you would like to suggest topics to be covered in

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